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Leadership for Change

Strategies for Leadership: Patient- and Family-Centered Care Toolkit Cover

Strategies for Leadership: Patient- and Family-Centered Care



A Roadmap for the Future

Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: A Roadmap for the Future Cover

Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: A Roadmap for the Future

Organizational Leaders and Managers

“…patients’ experience should be the fundamental source of any definition of quality.”
Don Berwick, President & CEO, Institute for Healthcare Improvement, 2002

Patient and family resource centers can be a visible, tangible expression of a hospital or agency’s commitment to family-centered practice. 

Adopt-a-Unit Rounds at MCG Health, Augusta, GA brings together senior executives with mid-level managers and patients and families to promote mutual learning for quality improvement.

Leaders of clinical programs, hospitals, community organizations, and public health agencies are in the unique position to shape health care policies and programs. Numerous leaders of health care organizations and associations are recognizing the value of collaborating with patients and families at both the clinical and policy levels to improve quality, safety, and the experience of care. The concepts of patient- and family-centered care are being integrated into unit and institutional visions and definitions of quality of care. Health care practitioner organizations are incorporating these concepts in their guidelines and standards of practice.

To truly be effective in enhancing quality and safety, patient- and family-centered care must be comprehensively integrated into organizational culture. For this reason, it is imperative that leaders at all levels have knowledge of the core concepts of patient- and family-centered care and ways in which they can support change.

Perspectives of Leaders

The vision and commitment of leaders are essential to advancing the practice of patient- and family-centered care within an organization. The experience and perspectives of leaders who have been on the forefront of changes in organizational culture can help inform the actions and processes developed by others.

Mike Nelson"We've started something new and exciting in the clinic this month. Our patient advisors are making rounds with our clinicians, observing the doctor-patient interactions, giving feedback, and coaching us on how to be more patient and family-centered. It's wonderful; we've learned so much."

Dr. Mike Nelson, Medical Director for the Presbyterian Medical Group in Albuquerque, NM, is leading the effort to develop a patient centered multidisciplinary team primary care delivery model. RN care managers, diabetes educators, pharmacy clinicians and masters level mental health workers working in primary care offices are partnering with patients and physicians to develop and implement collaborative self management programs for people with chronic conditions. Read More

Dr. Mike Nelson, Medical Director, Quality Improvement, Presbyterian Medical Group, Albuquerque, NM


Jim Conway"Whether you are talking to the Institute of Medicine, healthcare insurers, trustees and executives, the nurse in the NICU, or consumers, it is clear that to make the transformation we need in healthcare, we must have an active partnership with patients and families. This will require new skills in listening, learning and partnering. Amazing and courageous organizations, executives and trustees are out there ready to show us the way."

Don't miss Jim Conway's call to hospital trustees and executive leaders to... "make a commitment to patient- and family-centered care, to move it from a discussion of "if" to a discussion of "when and how," Read More

Jim Conway, Senior Vice President, Institute for Healthcare Improvement, has written a must read article in the Jan/Feb. 2008 Healthcare Executive.


Jack DavisGood staff, good intentions, and hard work are not enough. . . .To make and sustain progress in patient- and family-centered care you need to have a system-wide approach, the right foundation-including resources, staff, policies, structures-and leadership. A system that consistently includes patients and families will be safer and will provide a better experience-for patients, families, and staff. . . . There is a change coming-it's really a question of are we going to be behind it, or are we going to be out in front of it?

Jack Davis, President & Chief Executive Officer, Calgary Health Region, Calgary, Alberta, Canada

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Dr. Richard AronsonWe all have our own cultures, and our own biases. The challenge is for us to join together, in a spirit of discovering common ground and honoring diversity, embracing all cultures with unbiased language to create a myriad of new and previously unlikely partnerships throughout the state.

Richard Aronson, MD, MPH, Medical Director of the Office of Maternal and Child Health, Division of Family Health, Maine Center for Disease Control and Prevention, Department of Health and Human Services, Augusta, ME

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Pat SodomkaLeaders are responsible for the values of their organization. They're the guardians of the ideals of patient care. . .We translated our values of patient- and family-centered care into standards for performance for our staff. These standards are part of every job description and they are introduced in new employee orientation. Thus every individual who goes through orientation for our health system knows that they are expected to be patient- and family-centered.

Pat Sodomka, MHA, FACHE, Senior Vice President, MCG Health System & Director for the Medical Col lege of Georgia Center for Patient- and Family-Centered Care, Augusta, GA


The following articles, written by organizational leaders, describe processes of change in three different types of organizations: a large academic medical center; a specialty cancer center; and a children’s hospital within a large adult care institution.

Hobbs, S. F. & Sodomka, P. F. (2000). Developing partnerships among patients, families, and staff at the Medical College of Georgia Hospital and Clinics. Journal of Quality Improvement, 26(5), 268-276.

Ponte P. R., Conlin G., Conway J. B., Grant S., Medeiros C., Nies J., Shulman L., Branowicki P., & Conley, K. (2003). Making patient-centered care come alive: Achieving full integration of the patient's perspective. Journal of Nursing Administration, 33(2), 82-90.

Smith, T. & Conant Rees, H. (2000). Making family-centered care a reality. Seminars for Nurse Managers, 8(3), 136-142.