Links to Other Websites
Amyotrophic Lateral Sclerosis Association (Lou Gehrig’s Disease) provides national resources for families and individuals living with ALS.
Alcoholics Anonymous provides information on understanding alcoholism, resources, and helpful tips on how to deal with alcoholism.
Alzeimer’s Association provides information on local support groups for children of people with Alzheimer’s. A glossary of terms and a link to the organization’s Benjamin B. Green-Field Library and Resource Center is also available.
American Academy of Child and Adolescent Psychiatry provides information for families living with mental illness, and offers specific information for children of parents with mental illness.
American Cancer Society provides information on telling children about cancer and coping with cancer; as well as a glossary of terms and access to their Cancer Resource Center.
American Diabetes Association is a nonprofit health organization that provides diabetes research, information, and advocacy. Available resources include Diabetes in the Family: Family Member’s Needs Are Also Important, written by Satin Rapaport.
American Lung Assocationinforms and educates the public about the impact and prevention of lung disease. Contact your local American Lung Association for information about support groups in your area at 1-800-LUNG-USA.
Beacon of Hope provides resources and tips for partners and children of those diagnosed with a mental illness.
Cancervive is a Los Angeles-based, non-profit organization founded by a childhood cancer survivor, Susan Nessim in 1985. They provide emotional support, education and advocacy to assist survivors as they cope with the cancer experience.
Children of Alcoholics Foundationis a national non-profit organization that provides a range of educational materials and services to help professionals, children and adults break the cycle of substance abuse.
Hospice Foundation of America’s Year 2000 Initiative focuses on helping children and adolescents cope with loss. Resources such as, Living With Grief: Children, Adolescents, and Loss Articles and Essays, and Some Common Myths About Young People and Loss are available.
National Alliance for the Mentally Illoffers a 12-week Family to Family Education program for caregivers. This course is taught by trained family members and it is offered in hundreds of communities across the country and in two Canadian provinces. The curriculum focuses on schizophrenia, bipolar disorder (manic depression), clinical depression, panic disorder and obsessive- compulsive disorder (OCD). The course reviews clinical treatments and teaches coping skills and techniques.
The National Clearinghouse for Alcohol and Drug Information, a service of the Substance Abuse & Mental Health Services Administration, provides a wealth of resources for individuals and their families struggling with substance abuse.
National Hospice and Palliative Care Organization advocates for the terminally ill and their families and develops educational materials to enhance the understanding and availability of hospice and palliative care.
The National Parkinson Foundation provides several downloadable booklets on Parkinson’s disease, “ What You and Your Family Should Know” and “ Caring and Coping”. A public forum for open discussion among Parkinson patients and caregivers is also available.
National Pediatric & Family HIV Resource Centerprovides guidelines for children’s participation in HIV/AIDS programs and information for children living in a world with AIDS.
The Parenting Options Projects at the Center for Mental Health Services Research at the University of Massachusetts Medical School provides information on their website about current projects and available resources for parents with mental illness and their families.
Parenting Well provides resources to promote the health and well being of families affected by mental illness. The site offers access to downloadable fact sheets, academic papers and presentations, a parent self-assessment tool, and the Parent Link newsletter. For more information, contact info@parentingwell.info.
Project Resilience provides training opportunities and products for professionals working in education, treatment and prevention.
Through the Looking Glass is a non-profit organization located in Berkeley, California, that serves families in which a parent or child has a disability. In 2002, this organization completed a project called Parents with Disabilities and Their Teens. This was a 3-year project which focused on the experiences of parents with mental illness who were raising teenagers.