Advancing the Practice of Patient- and Family-Centered Geriatric Care
This publication introduces the concepts of patient- and family-centered care and serves as a guide for initiating a collaborative process to improve geriatric care in hospitals and residential facilities.
Changing the Concept of Families as Visitors: Supporting Family Presence and Participation
This publication is intended to serve as a practical resource to assist hospital units and institutions in re-envisioning "visiting" policies in favor of guidelines that are supportive of family presence and participation.
Developed to help guide organizations through the process of collaborative design planning.
Creating and Enhancing Patient and Family Resource Centers
This practical guide for developing patient and family resource centers addresses a range of issues, including planning, scope of services, selecting and organizing materials, staffing, use of technology, and evaluation.
Creating Children's Advisory Councils
Practical guidance and strategies for creating councils that involve children and youth.
Creating Patient and Family Faculty Programs
This publication offers practical guidance for creating ways for patients and families to serve as educators in graduate and undergraduate programs and in orientation and staff development.
Developing and Sustaining a Patient and Family Advisory Council
This resource profiles a variety of consumer advisory councils, their structures and activities.
Essential Allies: Families as Advisors
A practical how-to manual on involving families as consultants and advisors in policy and program development with examples and descriptions of how hospitals, state agencies, community programs, and universities have fostered family-professional collaboration.
Families as Advisors: A Training Guide for Collaboration
A practical step-by-step guide for conducting training sessions appropriate for both families and providers to increase the involvement of families serving in advisory roles. Includes handout and overhead transparency masters ready for copying.
Hospitals Moving Forward with Family-Centered Care
A publication designed to encourage hospital staff, governing and advisory boards, and families to engage in a process of change. This publication provides an overview of family-centered care with specific examples to help hospitals translate family-centered principles into practice.
This book explores the complex issues related to secrecy and disclosure of an HIV diagnosis to children and other family members. Families and providers share their insights and experiences and describe the process and decision making that accompanies the journey from secrecy to disclosure.
Making Connections-Building Support Networks for Families Living with HIV
A how-to manual for families and providers building family-to-family support networks in their communities. Includes many examples from successful family-to-family support networks.
Partnering with Patients and Families . . . Recommendations and Promising Practices
This publication, with funding support from the California HealthCare Foundation, is based on the deliberations and key recommendations that emerged from a unique meeting convened by the Institute for Family-Centered Care in collaboration with the Institute for Healthcare Improvement and funded by the Robert Wood Johnson Foundation. Highlighted are examples of best practices drawn from hospitals, ambulatory programs, medical and nursing schools, funders of health care, patient- and family-led organizations, and other health care entities. These organizations are making exemplary progress in partnering with patients and families to enhance quality and safety and to improve the experience of care. (For more information on the meeting, see Partnering with Patients and Families . . . A Roadmap for the Future.)
Privileged Presence: Personal Stories of Connections in Health Care
This book is a collection of over 50 stories that reflect people's health care experiences from the points of view of compassion, communication, collaboration, respect, and dignity...or their absence. This timely book uses real-world experiences recounted by patients and their families, nurses, doctors, and other healthcare professionals to illustrate what works and what doesn't, what increases or diminishes people's sense of confidence and well-being. Tools for improving care and creating partnerships are included in the book.
Words of Advice: A Guidebook for Families Serving as Advisors
The companion to "Essential Allies: Families as Advisors" is a workbook for families who are new to advisory roles.