During the past decade, the Institute has worked on collaborative endeavors with many organizations and agencies, including:
The Institute was a national partner for Remaking American Medicine, a four-part primetime television series broadcast on PBS in October and November 2006. The series told stories of change, focusing on the breathtaking advances being made in improving the quality of patient care and featured compelling profiles of providers and patients who are working together to change fundamentally the way health care is delivered in this country. The goal of Remaking American Medicine is to inspire and empower viewers, both members of the general public and health care professionals, to join in efforts to transform American health care.
In 2003, the American Hospital Association (AHA) invited the Institute to collaborate with it to help support the implementation of the Institute of Medicine's (IOM) 2001 report: Crossing the Quality Chasm: A New Health System for the 21 st Century. Initially, the Institute provided technical assistance to hospital leaders in AHA state associations. The Institute now authors a series of articles on patient- and family-centered care for a new column in AHA News, the organization's biweekly newsletter, that focuses on the IOM's six aims for change in health care. A "Patient- and Family-Centered Toolkit" for hospital CEOs, developed by AHA and the Institute, produced in Fall, 2004 builds on these ongoing collaborative efforts.
Hospital Design and Facility Design Planning
With support from the Robert Wood Johnson Foundation and the California Health Care Foundation, the Institute was able to expand the programming on hospital design and facility design planning at its International Conference in San Francisco in February 2005. Additional hospital design content was added to this website and a special issue of Advances was published in September 2005 focused on hospital design.
Tracking, Referral and Assessment Center for Excellence (TRACE)
Orelena Hawks Puckett Institute, Asheville, NC
The Institute worked with the Puckett Institute on a five-year federally funded initiative, Tracking, Referral and Assessment Center for Excellence (TRACE). The project investigated early identification and referral practices that facilitate families of infants with special health care needs connecting with early intervention services. The work included conducting extensive literature searches and interviewing programs across the country in order to develop a clear understanding of promising practices. These promising practices were tested in the field and evidence-based training materials have been developed and disseminated. The Institute focused on strategies to build knowledge and practices of health care providers to facilitate infants', children's, and families' access to services.
University of Massachusetts Medical School – Eunice Kennedy Shriver Center
In 2004, the Institute collaborated with the Eunice Kennedy Shriver Center at the University of Massachusetts Medical School to develop and teach a federally funded on-line course on family-centered care for health care professionals and family leaders interested in public health agencies. The Institute developed the curriculum, lectures, accompanying resources, and interactive exercises and served as faculty for this six-week course. The pilot was very successful and it will be offered again in the near future.
In 2002, the American Academy of Pediatrics (AAP) Committee on Hospital Care invited the Institute to collaborate in the development of a policy statement on family-centered care. The policy statement "Family-Centered Care and the Pediatrician's Role" was approved by the AAP's Board of Trustees and all of AAP's committees and liaisons, and was published in the September 2003 issue of Pediatrics.
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The Institute collaborated with the Association of American Medical Colleges (AAMC) to convene a working meeting on patient- and family-centered medical education. Proceedings from this meeting were widely distributed. |
The Institute has worked with the National Association of Children's Hospitals and Related Institutions (NACHRI) on several projects. Initially we helped leaders implement family-centered concepts in newborn intensive care. More recently, the Institute provided programming on patient safety and how to partner with patients and families.
From 1998 to 2001, the Institute assisted the American College of Healthcare Executives in planning and conducting a series of conferences for executives, entitled Patient- and Family-Centered Care: Good Values, Good Business.
In 1997, the federal Health Resources and Services Administration, U.S. Department of Transportation, National Highway Traffic Safety Administration, and the Institute jointly published Working with Families to Enhance Emergency Services for Children. This document includes self-assessment inventories for emergency departments, community providers, and state agencies. This document can be found at (needs the link) www.ems-c.org/. In 2000, the National Association of Emergency Medical Technicians published the document, Family-Centered Pre-Hospital Care: Partnering with Families to Improve Care, with review by the Institute.
In 1999-2000, the Institute provided technical assistance to the federal Center for Mental Health Services, planning and convening a national meeting on parental illness and its impact on the family and providing leadership and logistical support for strategic planning. The Institute developed a website and a report on this topic.
The Institute has provided training and technical assistance to the National Patient Safety Foundation on developing its Patient and Family Advisory Council and creating other partnerships with patients and families to enhance patient safety. The Institute developed the publication, Your Role in Safe Medication Use: A Guide for Patients and Families, for the Massachusetts Hospital Association and the Massachusetts Coalition for the Prevention of Medical Errors.
In 2003, the Society of Pediatric Nurses and the American Nurses Association (SPN/ANA) published Family-Centered Care: Putting It into Action, The SPN/ANA Guide to Family-Centered Care. This publication provides an extensive review of the literature and offers nurses practice recommendations for a family-centered approach to care, which SPN defines as "the standard of care for pediatric nursing." The Institute reviewed this publication, had the opportunity to shape some of its focus, and wrote the preface. The Institute's hospital self-assessment inventory is included in the appendix.
The Institute served as faculty for two quality improvement projects for the Vermont Oxford Network (VON), between 1998 - 2005. VON is an international organization committed to improving quality and safety in medical care for newborn infants and their families through education, research, and quality improvement. VON has completed five quality improvement collaboratives spanning 14 years. Family-centered care was an area of focus for the second and third collaboratives. The second collaborative included 34 hospitals; the third included 46. Families participated as consultants and as members of improvement teams. In addition, the Institute served as faculty for VON's iNIC/Q program—a web-based teleconference designed to extend the learning opportunities to hospitals that were not part of the quality improvement collaboratives. More than sixty hospitals participated in iNIC/Q. Three published supplements of Pediatrics describe the work.